WHO ARE WE AND WHAT IS MCADD?:
The Ethan James Wyne Organization has been a professional organization since October of 2013. We are a group of local professionals and close friends and family to Becky and Trevor Wyne whom tragically lost their precious son, Ethan, on September 12, 2013.
Ethan was born with a very rare genetic disorder called Medium chain acyl-CoA dehydrogenase deficiency (MCADD). Children who are born with MCADD are either missing or born with a non-functioning enzyme that is responsible for the breakdown of fatty acids in consumed and stored food. These acids, once broken down, are the source of the energy we need to live. If caught early, children who are born with MCADD can live happy and healthy lives when diet and health are monitored very closely. Becky and Trevor knew right away that they needed to do something to raise awareness and education. Thus, this group of closely knit friends and family has been formed in Ethan’s honour.
To learn more about MCADD, please visit this website: http://www.newbornscreening.info/Parents/fattyaciddisorders/MCADD.html#1
To learn more about our organization and Ethan’s story, please visit our website:
We have been established since October, 2013, and are very much still in the start up process. We have received our Registered Canadian Charitable status under the Canadian Revenue Agency as of June 2014.
As an organization we have three main objectives:
- Increase AWARENESS AND EDUCATION for health care professionals, expectant parents, and the general public
- Provide SUPPORT to all people affected by MCADD
If you wish to help out with our cause by making a donation, you may do so by:
Secure Online Donation:
Mailing a cheque to:
Ethan James Wyne MCADD Organization
P.O. Box 22036
Or to make other arrangements email:
President: John Jansen
Vice President: Sharon Elliot
Secretary/Treasurer: Becky Wyne
Director of Marketing and Fundraising: Candice Deleurme
Director: Trevor Wyne
Director: Ryan Connors
Director: Charlotte Edwards
Director: Pamela Edwards
Please feel free to contact any of the board members at the following:
This site will be frequently updated with information on how you can help out. We will be advertising fundraising events, awareness events, informational sessions, resources, as well as our ongoing objectives as a formal organization. So, stop by often to get the updates!
May Ethan’s legacy live on through those he helps!
Pamela Edwards posted in Ethan James Wyne MCADD Organization — with Ryan Connors and Charlotte Edwards.Thursday, October 8th, 2015 at 9:33am