Ethan James Wyne MCADD Organization



lrn

LEARN




help

HELP & SUPPORT




donate

DONATION




mission

MISSION





  Upcoming Events

Ethan James Wyne MCADD Organization

WHO ARE WE AND WHAT IS MCADD?: The Ethan James Wyne Organization has been a professional organization since October of 2013. We are a group of local professionals and close friends and family to Becky and Trevor Wyne whom tragically lost their precious son, Ethan, on September 12, 2013. Ethan was born with a very rare genetic disorder called Medium chain acyl-CoA dehydrogenase deficiency (MCADD). Children who are born with MCADD are either missing or born with a non-functioning enzyme that is responsible for the breakdown of fatty acids in consumed and stored food. These acids, once broken down, are the source of the energy we need to live. If caught early, children who are born with MCADD can live happy and healthy lives when diet and health are monitored very closely. Becky and Trevor knew right away that they needed to do something to raise awareness and education. Thus, this group of closely knit friends and family has been formed in Ethan’s honour. To learn more about MCADD, please visit this website: http://www.newbornscreening.info/Parents/fattyaciddisorders/MCADD.html#1 To learn more about our organization and Ethan’s story, please visit our website: www.ejwmcadd.org OUR STATUS: We have been established since October, 2013, and are very much still in the start up process. We have received our Registered Canadian Charitable status under the Canadian Revenue Agency as of June 2014. OUR OBJECTIVES: As an organization we have three main objectives: - Increase AWARENESS AND EDUCATION for health care professionals, expectant parents, and the general public - Provide SUPPORT to all people affected by MCADD DONATIONS: If you wish to help out with our cause by making a donation, you may do so by: Secure Online Donation: https://www.canadahelps.org/en/charities/ethan-james-wyne-mcadd-organization/ Mailing a cheque to: Ethan James Wyne MCADD Organization P.O. Box 22036 Brandon, MB R7A 6Y9 Or to make other arrangements email: ejwmcaddorg@yahoo.ca BOARD MEMBERS: President: John Jansen Vice President: Sharon Elliot Secretary/Treasurer: Becky Wyne Director of Marketing and Fundraising: Candice Deleurme Director: Trevor Wyne Director: Ryan Connors Director: Charlotte Edwards Director: Pamela Edwards CONTACT INFORMATION: Please feel free to contact any of the board members at the following: Website: www.ejwmcadd.org Email: ejwmcaddorg@yahoo.ca This site will be frequently updated with information on how you can help out. We will be advertising fundraising events, awareness events, informational sessions, resources, as well as our ongoing objectives as a formal organization. So, stop by often to get the updates! May Ethan’s legacy live on through those he helps!
Can Dice
Can DiceFriday, July 10th, 2015 at 2:15am
Our new website is launched!!! Check it out at ejwmcadd.org and let us know what you think!!!
16 2    View on Facebook
Pamela Edwards
Pamela Edwards posted in Ethan James Wyne MCADD Organization — with Tabetha Edwards and 2 others.Saturday, June 20th, 2015 at 3:39pm
3 1    View on Facebook
Pamela Edwards
Pamela EdwardsSaturday, June 20th, 2015 at 3:39pm
Brandon MCADD awareness walk.
3 1    View on Facebook
John Jansen
John JansenSunday, May 31st, 2015 at 4:15am
We are at the entrance to the DASH tent at the children's fair today from 10-4 come visit us
10    View on Facebook
Pamela Edwards
Pamela EdwardsSaturday, May 30th, 2015 at 1:32pm
Tomorrow May 31 @ 10-4 also info table on our MCADD Organization to direct you through the Dash Tent. Spreading awareness is our goal.
5    View on Facebook
Sign Up For Our Newsletter
Subscribe us for our newsletter or sign up.

Copyrite@2014. All Rights are Reserved